FollowFriday
#ff @CaringBridge #pinkribbon #breastcancer @BCAPledge @HospStRaphael #domesticviolence #DVAM #hcr
Submitted by Aldon Hynes on Fri, 10/22/2010 - 09:46For this week’s Follow Friday post I have selected the topic Social Media and Health Care. For people who don’t regularly read my Follow Friday posts, every Friday, avid social media users post people, or sometimes hashtags that they follow. People’s screen names on Twitter typically start with the at-sign, like @CaringBridge @BCAPledge and @HospStRaphael. Topics often start with a hashmark or pound sign to make them stand out, and are referred to as hashtags. The title of this post is made up of hashtags and twitter handles and might seem unintelligible, but is really conveying important information, especially to people who find this link on Twitter.
Perhaps one of the most important social media sites around health care is CaringBridge.
CaringBridge provides free websites that connect people experiencing a significant health challenge to family and friends, making each health journey easier. CaringBridge is powered by generous donors.
CaringBridge is a great site. However, some people are fighting health challenges that don’t rise to the level of ‘significant’. They might have a simple operation, like a knee replacement, where they will be up and running fine before they know it, but it is still helpful to have a discussion online. They might have a chronic, but not life threatening disease that they want to talk with friends about. Or, they might have a significant battle with cancer and want to talk about it to anyone that will listen. For some people like this, Facebook updates or blogs might be a better way to go.
One blog that especially touched me was Gotta keep on keepin' on........ At the top it says
Cancer again...that's 3 times in 2 years. This time it’s not breast cancer, but a new one called squamous cell carcinoma. New cancer, same old fighting spirit! My blog is still named for one of many songs that kept me going the first time around. Driving home from an upsetting appointment, I turned on the radio just as this line from Steve Miller Band's Jet Airliner was playing: "I've got to keep on keepin' on"....so I did just that. And I'll do it again.
Then, there is the most recent post from September
This is John. I just wanted to post a note on this, the first anniversary of Kate's passing. I am posting the same note on her Facebook page, so sorry to be redundant for those who see it both places.
Wow, it's hard to believe it has been a year now. In some ways it seems like yesterday and in others it seems like a lifetime ago. It's been a very busy, full year with school, sports, dance, piano and just normal-life stuff, then a very busy summer with swimming & travel and now getting ready for school again. We are all doing about as well as I could have hoped. The kids are amazing - their focus on happy memories and resilience have helped keep us all going. Kate is part of our lives every day...
On a more upbeat note, another friend wrote the blog My trip with breast cancer. She hasn’t written on this blog in close to two years. Instead she’s been busy with her family and work as a travel agent.
Besides support during difficult health situations, such blogs, and other social media campaigns provide an additional benefit, awareness. October is National Breast Cancer Awareness Month. Many of the blogs I visit are participating in the The Pink Ribbon Challenge. It is a great way of reaching out to more people about breast cancer awareness.
October is breast cancer awareness month. As a health care worker, I see and dealt a lot of patients even friends going through the battle of breast cancer. This month I would like to join the pink ribbon challenge. Just click the pink ribbon to help one woman save life by getting free mammogram. If you may join with me and pass the pink ribbon challenge. These links are ONLY for "Pink Ribbon Challenge" participants, any links not related to the Pink Ribbon Challenge will be deleted. Grab the code at Things We Share and post it in your blog entry. Please post only the Pink Ribbon Challenge actual post link here and help The Breast Cancer Site and National Breast Cancer Foundation Inc. by spreading the Pink Ribbon Challenge.
There are also various breast cancer awareness drives on Twitter. The Estee Lauder Companies Breast Cancer Awareness campaign has @BCAPledge and #BCAPledge. Others are using #pinkribbon and #breastcancer as hash tags. Here in Connecticut, The Hospital of St. Raphael, @HospStRaphael is also using social media to raise breast cancer awareness.
Another health issue is domestic violence, and October is also domestic violence awareness month. People are posting about this with the #domesticviolence and #DVAM hashtags. One important campaign on this front is The Red Flag Campaign.
The Red Flag Campaign is a public awareness campaign designed to address dating violence and promote the prevention of dating violence on college campuses. The campaign was created using a “bystander intervention” strategy, encouraging friends and other campus community members to “say something” when they see warning signs (“red flags”) for dating violence in a friend’s relationship.
Then, there is the political level, with many discussions about health care reform taking place on the #hcr hashtag. All of these only scratch the surface of social media and health care and I hope to be exploring this in more detail over the coming months.
#ff @CT_Shoreline @cjpphotography @lifewithwendy @lisamikulski @kcarpentier @podcampct
Submitted by Aldon Hynes on Fri, 10/08/2010 - 19:52There is a reason they call it social media and it has to do with more than just reading each others content. Last night, I got together at a coffee shop in New Haven with some bloggers that are interested in getting to know one another and share ideas and experiences. I enjoy getting together with bloggers and other social media users this way.
@CT_Shoreline @cjpphotography @lifewithwendy were all there along with a few other people. @lifewithwendy wrote about the gathering in her post How To Become A Blogger.
She described the group as “really cool cats who had decided to share a passion that might change some one’s life”. She ended her post with the observation:
If only I had this in high school. If only I could have picked 5 people from completely different walks of life and appreciated them for what they were on the inside versus what they appeared to be, my life would have been different.
It captures very well what is important to me about blogging. Yes, we can talk about monetization, expanding our influence or honing our writing skills, but to me, perhaps the greatest value of blogging and related types of social media is to get to know people completely different walks of life and appreciate them for who they are.
@lisamikulski and @kcarpentier are two others that wanted to attend and couldn’t make it. There in spirit and in the discussion was also @podcampct. We talked about PodcampCT which will take place in New Haven on October 16th. In many ways, the little session we had around the coffee table last night was a good precursor to many great discussions I expect to take place at Podcamp. Join us!
#FF #PCCT
Submitted by Aldon Hynes on Fri, 10/01/2010 - 12:24@PodcampCT @maryanncruz @miss60s @bermamot @JimAkin @copperdome @Betsy_RSHC @doncrouch @CTchrisadams
This Follow Friday (#FF) post is for people attending PodcampCT (#PCCT or @PodcampCT). Already, there are over thirty interesting people that have signed up. However, I couldn't list all of them here, so I thought I would select out a few.
I don't believe I know any of the people on the list above. If I do, we may have met at a Tweetcrawl, know each other in other contexts or stuff like that. This is part of the reason I chose them for this week's #FF. One of the things that I like about Podcamps and other unconferences is getting to know new people.
It is also worth noting that there are a bunch of people showing up from Rhode Island and Massachusetts. I skipped these people for right now, focusing on the Connecticut Podcampers. Since I've been to two podcamps in Western Massachusetts, many of the Massachusetts podcampers were also people that I already know.
It is an interesting group of people that are coming; technologists, marketers, non profit activists, and beyond. There are also some big name media personalities attending, but they already have their names out there, so I skipped them for this list. This too, illustrates one of the things that I value so much about Podcamps; meeting a wide diversity of people and encountering many new ideas.
If you are in the greater Connecticut area, will you be coming to PodcampCT? It is time to signup. For folks beyond Connecticut, check out other upcoming Podcamps, including those in New Hampshire, Kansas and Arizona.
#ff @grovenh
Submitted by Aldon Hynes on Fri, 09/10/2010 - 11:28@RetailGoddesses @SheSoSocial @giuliag @jwierin @derekkoch @MatthewBrowning @joecascio @timtracey @leecruz @Mertens4Senate @TTHofficial @MyConnecticut
Last night, I attended the opening of The Grove, a coworking space in New Haven, CT. Many of my friends have used coworking spaces in New York and San Francisco and I've hoped that a coworking space would open up here in Connecticut.
Coworking fits hand in hand with social media, so it was great to see many friends from various social media activities there. There was the standard group of people from SocialWebWeek, @RetailGoddesses @SheSoSocial @giuliag @jwierin @derekkoch and @MatthewBrowning. Although I don't remember if I ran into @MyConnecticut as part of the Social Web Week activities, Courtney is very much a social web person and I would include her in this group.
There was the tweetcrawl and podcamp crew, @joecascio and @timtracey. There was the nonprofit and advocacy crew, @leecruz and @TTHofficial. @timtracey also sort of fits in that space with his Yougottacall project. Also part of this group was Nathan Bixby.
In the political sphere a couple friends from Governor's Dean's 2004 Presidential campaign were there as was John Mertens who is running for U.S. Senate in Connecticut, @Mertens4Senate.
Also there were Matt and Lindsay Branscombe. Lindsay made a splash at the technologists and entrepreneurs meet during Social Web Week when she reminded everyone of the importance of design and it was good to have an arts and design perspective reflected not only in the photographs on the wall of the Grove but also by some of the participants.
I'm probably missing a bunch of other people that I spoke with at the opening of The Grove last night, but it gives a good flavor the variety of people that were there. It helps illustrate why I believe coworking is so important. It is when you connect with people from a bunch of different viewpoints that you can gain the insights to make whatever project you are working on more successful. The Grove is setting out to be a place where connections like this are made. They got off to a great start and I wish them well.
#ff @khynes2000 @shesosocial @ctnewsjunkie
Submitted by Aldon Hynes on Fri, 09/03/2010 - 15:40It's my birthday! I went out to lunch with my boss and am having dinner with family and friends. Well, sort of. You see, about ten years ago, I participated in a strange mystical ceremony where I became 'one flesh' with the person I loved.
Today, it is Kim's birthday. Through the mystical ceremony, I am one flesh with her, so to that extent, it is also my birthday. I was with Kim, as part of being one flesh, as she had dinner with her boss. We will be one flesh as she eats dinner with our family and friends this evening.
Whenever she is joyful, it is no longer just she who is joyful, it is both of us. The same applies to sadness and sickness. Today, we also mourn the death of Kim's mother, who left this world eleven years ago today, when Kim and I were having dinner with Kim's father, brother and sister-in-law.
Over the past couple of years, I've had a horrible time fighting lyme disease. While a doctor might test my blood and find no traces of lyme disease in me, being of one flesh with Kim, I have lyme disease. We have experienced the disease in different ways, just as the nose and the stomach may experience different aspects of the flu, but we have fought this together.
In a similar fashion, a couple years ago, Kim and I developed a shellfish allergy. We first noticed it when I prepared shrimp for her for mother's day. It is disappointing that I cannot eat shrimp or lobster any more. Yet in fact, really, I can. It is just that my other digestive system, Kim's, needs to eat the lobster, and not I.
Being Friday, I am putting this up as a Follow Friday post. If you follow me on Twitter, you should follow @khynes2000 as well.
Not only is today Kim's (and by extension, my) birthday. It also sees the celebration of anniversaries of some friends. @ctnewsjunkie and her husband celebrated their third wedding anniversary this week. Tomorrow, @SheSoSocial and her husband are celebrating their fifth wedding anniversary.
I hope their relationships may flourish the way Kim and mine has.
A final thought: I had a philosophy professor that commented, "It isn't love that keeps marriage together, it is marriage that keeps love together." Kim and I have had some pretty rough times over the past decade. I'm sure we will have plenty more. If we were relying on the first flush of love to keep our marriage together, things probably would have been more difficult when we went through hard times. Yet it is birthdays and anniversaries, it is marriage, that is our opportunities to be reminded of and rekindle those early days of mad love.
Happy Birthday, Kim.